Alpha1 Foundation

The Alpha-1 Foundation is a not-for-profit organization based in Coral Gables, Florida. Founded in 1995, the organization is dedicated to finding a cure for Alpha-1 Antitrypsin Deficiency (Alpha-1), a genetic disease, and improving the lives of those affected by it globally. The foundation is led by a board of directors, many of whom have either been diagnosed with Alpha-1 or have a family member with the condition. The Alpha-1 Foundation focuses its efforts on advancing research and development of new therapies for Alpha-1. They actively collaborate with researchers in the United States and Europe, working closely with institutions such as the National Institutes of Health and the Food and Drug Administration. The foundation also partners with pharmaceutical companies and patient advocacy groups to accelerate the development of improved treatments. A key aspect of the Alpha-1 Foundation's work is its extensive investment in research. Since its founding, the organization has committed over $90 million to support Alpha-1 research and programs. This funding has enabled the foundation to establish important initiatives like the Alpha-1 Research Registry, the Alpha-1 DNA & Tissue Bank, and the Alpha-1 Research Network. They also host international scientific conferences and critical issues workshops, fostering a global community dedicated to finding a cure for Alpha-1. Individuals interested in learning more about the Alpha-1 Foundation or supporting their mission can visit their website at alpha1.org. The foundation is also active on social media platforms such as Facebook, Twitter, and Instagram.