Williams Syndrome Association

The Williams Syndrome Association is a non-profit organization based in Newark, New Jersey. The organization employs 30 people and generates an annual revenue of $2.5 million. The Williams Syndrome Association (WSA) is dedicated to improving the lives of individuals and families impacted by Williams syndrome and similar conditions. The WSA offers comprehensive resources and support to individuals with Williams syndrome, their families, doctors, researchers, and educators. Their services include providing families with the necessary resources and referrals, connecting them with a supportive community, and offering a roadmap to help them navigate the challenges associated with Williams syndrome. This roadmap includes answering frequently asked questions, providing step-by-step guidance, information about WS clinics nationwide, and best practices for age-appropriate interventions. The organization distinguishes itself by being the most comprehensive resource available for those living with Williams syndrome. They strive to create a strong and supportive community, ensuring families have the tools and connections necessary to thrive. For more information, please visit williams-syndrome.org.