Rare Kidney Disease Foundation

The Rare Kidney Disease Foundation is a patient-led organization committed to supporting individuals and families affected by rare kidney diseases. Established in 2018 in the United States, the foundation is driven by the personal experience of a family impacted by ADTKD, a rare genetic condition leading to kidney impairment. With a small team of three employees, the foundation operates with a focus on providing resources, fostering connections, and advocating for improved care and understanding of rare kidney diseases. The Rare Kidney Disease Foundation primarily serves individuals diagnosed with ADTKD and their families. They aim to raise awareness about this often-overlooked condition, connect patients and families facing similar challenges, and advocate for increased research, treatment options, and support services specifically tailored to their needs. The foundation distinguishes itself through its patient-led approach, ensuring that the voices and experiences of those directly affected by rare kidney diseases are at the forefront of their mission. Their commitment to building a strong community provides a vital source of support and understanding for individuals navigating the complexities of living with these conditions. For inquiries or to learn more about the Rare Kidney Disease Foundation's work, please visit their website at rarekidney.org.