Rare Advocacy Movement

The Rare Advocacy Movement (RAM) is a non-profit organization based in Princeton Meadows, New Jersey. Comprised of a team of five dedicated individuals, RAM is a global network focused on advocating for the unique needs of the rare disease community. RAM's mission is to empower and unite individuals affected by rare diseases by providing a platform for their voices to be heard. They strive to create a collaborative ecosystem that fosters transparency, inclusivity, and equal representation for patient stakeholders within the therapeutic development process. Through a series of initiatives called "RAM Collaborations," they aim to develop sustainable programs, resources, and opportunities that enhance the lives of rare disease patients and their families. RAM distinguishes itself through its commitment to ensuring that the perspectives and experiences of the rare disease community are accurately reflected and valued within the healthcare industry. They actively work to clarify biases and misunderstandings, advocating for the authentic representation of patient voices as equal stakeholders alongside industry representatives. For more information about RAM's work and to connect with their network, please visit www.RareAdvocacyMovement.com. You can also follow their social media channels @RareAdvocacy.