Myositis Support and Understanding Association Inc

Myositis Support and Understanding Association Inc. is a 501(c)(3) nonprofit organization headquartered in Lincoln, Delaware. Founded in 2015, the organization is comprised of seven employees. MSU provides various resources for individuals living with myositis, including financial assistance for mobility devices, medical bills, household expenses, and travel to specialists. They collaborate with other organizations, pharmaceutical companies, and researchers to advance treatment innovations and research aimed at finding a cure. MSU's initiatives include patient-led research projects, such as The Pain Project, focusing on patient-reported outcome measures. MSU distinguishes itself through its patient-centric approach, empowering individuals with myositis to share their experiences. Their platform, #MyositisLIFE, allows contributors to share stories, videos, photos, and memes, providing insight into the realities of living with the condition. MSU also fosters community through partnerships, offering a support community on Inspire and a live video support program connecting patients and caregivers globally. Individuals seeking more information about MSU and myositis can visit UnderstandingMyositis.org.