Her ALS Story

Her ALS Story is a non-profit organization based in the United States. Founded by a group of women all diagnosed with ALS at a young age, the organization is dedicated to raising awareness about the disease and advocating for improved treatment and support for patients. Currently employing three individuals, Her ALS Story operates with a focus on collaborative action and open communication. The organization's primary goal is to change the narrative surrounding ALS, which is often perceived as a rare disease affecting older men. Her ALS Story highlights the reality that ALS can strike anyone, regardless of age, gender, or background, emphasizing the need for increased research and resources. They actively engage in efforts to improve insurance and Medicare coverage for ALS patients, and advocate for legislation to accelerate the development of new treatments. Her ALS Story distinguishes itself through its unique composition of patients leading the charge. Their personal experiences and lived realities drive their mission, providing a powerful voice for those affected by ALS. The organization fosters an open dialogue about the challenges faced by patients, emphasizing the importance of sharing stories and building a supportive community. To learn more about Her ALS Story and how to support their mission, visit their website at heralsstory.org.