FTD Disorders Registry LLC

FTD Disorders Registry LLC is a small company based in San Francisco, California, with four employees. The company operates an online database, the FTD Disorders Registry (FTDDR), which serves as a resource for individuals and families affected by frontotemporal degeneration (FTD). The FTDDR collects information from those diagnosed with different types of FTD, including behavioral variant FTD, primary progressive aphasias, progressive supranuclear palsy, corticobasal degeneration, and FTD with motor neuron disease. The registry aims to connect the FTD community, encompassing those diagnosed, their loved ones, caregivers, friends, clinicians, scientists, and industry professionals. The FTDDR offers two distinct functionalities: a Contact Registry and a Research Registry. The Contact Registry allows individuals from the US and internationally to join and receive updates on FTD research and potential study opportunities. The Research Registry, open to US and Canadian residents aged 18 or older, invites participants to contribute their experiences and perspectives to advance FTD research. Interested parties can learn more about the FTD Disorders Registry by visiting their website at ftdregistry.org.