FSH Muscular Dystrophy Society

The FSHD Society is a non-profit organization based in Randolph, Massachusetts. With 45 employees, the organization is dedicated to advancing research and providing support for individuals living with facioscapulohumeral muscular dystrophy (FSHD). The FSHD Society is the world's largest research-focused patient organization for FSHD, one of the most common forms of muscular dystrophy. Their goal is to develop treatments and ultimately a cure for FSHD, which affects one million people globally. This includes providing resources and support to individuals and families impacted by the disease. The organization is committed to accelerating research and making a meaningful impact on the lives of individuals living with FSHD. They achieve this through several key strategies, including increasing their reach, engaging with stakeholders, and actively leveraging resources to support their mission. To learn more about the FSHD Society and their work, visit their website at fshdsociety.org.