CJD Foundation Inc

CJD Foundation Inc. is a non-profit organization headquartered in Akron, Ohio. The organization employs 11 people and generates an annual revenue of $2.5 million. CJD Foundation Inc. is dedicated to supporting families and loved ones affected by Creutzfeldt-Jakob Disease (CJD), a fatal brain disease. They achieve this through various initiatives, including publishing informational pamphlets, engaging in political and public policy advocacy, hosting annual family conferences and workshops across the country, and collaborating with research institutions like the National Prion Disease Pathology Surveillance Center and the Centers for Disease Control and Prevention. The foundation distinguishes itself through its proactive approach, fostering collaborations with researchers, medical professionals, political representatives, and international support groups from ten other countries. They prioritize providing support, information, and practical advice to families facing this challenging disease, while emphasizing that they do not offer medical advice. For further information or to access their resources, visit CJD Foundation Inc.'s website at cjdfoundation.org.